The end of Anonymity?

Over recent years many people have had their DNA analysed and results posted online. The results have been anonymised, but the vast spread of information on the web calls into doubt the possibility of really making information untraceable.

Last week the Boston Globe ran a story reporting an article published in the journal Science, in which researchers demonstrate how they correctly identified individual identities of the owners of some of this DNA.

DNA

DNA, a personal business

Scientists at the Whitehead Institute for Biomedical Research wanted to identify the owners of anonymous DNA samples that are available for research purposes online. They did not have any high technology, using ancestor tracing websites and freely available public documents.

We are not talking about hackers or expensive programs, we are talking about people with every-day computers and the same understanding of how they work as you or I.

It took a single researcher with an Internet connection about three to seven hours per person, and all in all the identities of more than 50 participants were discovered.

This raises several issues. What about all of those people who gave materials for research who find themselves posted and traceable on the Internet? What obligations do commercial companies such as 23andMe have towards their customers, operating in a more or less unregulated environment? (see here for posts about their organization). Can there be real guarantees of anonymity in modern life? Given the obvious advantages of data gathering how can it better be shared in order to protect individual owners?

The very scientists who conducted the research argue that the privacy problem needs to be completely re-analysed, with some scientists dubious that privacy to any extent can be guaranteed.

Problems related to this are both practical and philosophical. In the US the GINA legislation was set up to protect individuals from the effects of their DNA codes (and analysis of it) falling into the ‘wrong hands’. The wrong hands in this case are those of health insurance companies, that might not want to insure a person (or may want to charge more) because they have one particular gene mutation or another.

There are shortcomings however, the GINA legislation does not allow health insurance companies to discriminate on the basis of DNA testing, but other insurance companies are not legislated against. Life insurance and long term care insurance is not covered under the document, so in theory they would be free to decline cover on the basis of DNA analysis. This is particularly important as long term care is extremely expensive and is not covered through health insurance.

Given that anyone who has given their DNA for research purposes risks being identified, they may also risk discrimination.

Citizens connect!

This week I would like to take a look at a couple of technological and social systems that use Apps and are designed to improve urban living in cities. If you have ever asked yourself how technology can improve our lives then the following might be of interest to you.

The first thing I would like to look at is called Citizens Connect, a system that operates in Boston in the USA (where I currently live). According to the website “Citizens Connect enables real-time collaboration with citizens, “deputizing” mobile users to become the city’s eyes and ears. Citizens report potholes, graffiti, and other issues from anywhere in the city using their mobile phone”

And this is how it works, and it is a simple system if you have a reasonably good mobile phone. While walking or driving through the city you see something that you feel should be reported to the City Council, an abandoned car, vomit on the pavement, water gushing from a hole in the road, cat stuck up a tree, that kind of thing. You take a photo of it, upload it on the City of Boston website, they show it on a public map and (hopefully) send somebody out to fix the problem.

A map showing reported problems on Citizens Connect

I personally believe that a person is much more likely to report something if they can take a photo and send it off in real time than if they have to go home, look up a phone number and make a call. Could this be a fist step in making the citizen and the state more communicative and more responsible?

The City of Boston also offers another App called Street Bump. This is even simpler to use, you download it into your phone and it monitors your movement as you drive round the city. When you near a hole in the road you slow down, as does everyone else passing that spot, and this information is used to determine the quality of the road surface.

If you think your local council should try such a scheme, you can direct them towards Click Fix, a commercial system that is currently on sale and operated by several cities and other organizations. This is not a recommendation however, but their work does look very interesting.

Next week I will continue this theme with a look at an interesting university course all about “Urban Cybernetics” that is run at Harvard University. Some of the projects may offer great things for the future.

Second Hand Technology Finds

If you walk round Cambridge in Massachusetts in June, you find the streets filled with discarded belongings. The students are leaving Harvard, MIT, Boston University and all the others institutions and as they leave they abandon the things they cannot take with them by the side of the road. Many stacks of things have a little note or post it attached saying ‘take me’ or ‘free, working’, and it is very much part of the culture to take things.

On my final few days in Cambridge last week I walked the streets with my kids from one park to another, and I collected some interesting things, including some very interesting and expensive pieces of second hand technology.

A common sight on Cambridge Streets

I collected a pair of M Audio AV40 studio speakers, fully functioning and beautiful to listen to. List price $229.99. A few scratches on the top of one but obviously only had light domestic use. Into the back of the bike trailer they went and onward on our hunt.

Further down the road I picked up a large 27 inch LCD computer screen, again lightly used and well looked after. At least $200 if you buy it new, as its previous owner had done probably 9 months before.

I was fortunate enough to pass a young student as she emptied her office into a box on the street, so I collected 6 Moleskin divided folders ($26 each), 200 blank DVD’s and cases, about 60 blank CD’s and 2 nice moleskin notebooks. Into the trailer, the kids can walk.

Last year I saw bags of cables, modems and power units, and as I moved from Europe I took what I needed.

On this trip I also saw a 32inch flat screen TV but I couldn’t carry it, and a standard size LCD TV too but with no remote control. I left that where it was too and will explain why.

The thing about TV’s and monitors is that you have to pay $25 for the city services to pick them up, so many are abandoned. If you pick one up and it doesn’t work you have to pay to dispose of it, or leave it outside again for someone else to do the same. Either way not a great result. I also saw at least 10 old cathode TV’s, only one with the label to demonstrate that it had been paid for.

This started me thinking about the effect that a moving student population must have on the technology market and by extension the development of new products. Practically every student has a laptop, smart-phone, TV and high speed internet at home and these things are all paid for when they move to their university of choice. Producers must see a massive peak in September, and an associated rise in profits.

So this leads to the question of what happens to all of this stuff when they move on. In many cases they take it, but some cannot be transported and is left, either by the side of the road, dumped or left in the house.

As we all know the dumping of technology is extremely damaging, recycling a must but also ethically dubious, so how about something like the Cambridge model?

The model is also used here for cans and bottles. If you buy a beer in a bottle or can, the can or bottle has a value. If you take it back to the shop they recycle it and give you 10c back. I have seen the same model with plastic bottles in Scandinavia. The result of this scheme is that a business has grown up around collecting empty bottles etc from the bins, students in the case of Scandinavia and homeless people here.

Well, for however much you might not like the idea of going through somebody’s recycling bin for returnables, it looks like an extremely efficient form of recycling to me, and revenue for those people that really need it. And although I don’t do bottles you should see my well stocked office and hear my stereo at home!

Waste less!